Fearless child's beginning

This is my first blog. By no means am I a journalist so bear with me here. Let me do a brief introduction my name is Heather (mom),  Brian (dad) and Big sister Ella. Not only are we parents to one Fearless child but also to a strong willed little girl named Ella who is 6 years old and was diagnosed at 3 with High Functioning autism ( Asperger Syndrome). Our life is one busy mess but it's our life and wouldn't have it any other way. Let me give you Abel's Bio so we can get to the present day. 

At 14 weeks of my Pregnancy we found out we were having a child myelomeningocele spina bifida and hydrocephalus. I was totally terrified what the Future held for all of us. But we kept on going. We were told so many things from the point of Aborting my pregnancy at 20 weeks. To our child will be a vegetable. But that was not going to happened. At 32 weeks I was told I would need to Deliver. But I refused the doctors told me he was fine. So I fought to keep him put. I held out to 40 weeks And September 17th, 2011 born via C-section at 5:45pm Abel J.T. Rose was born.

Abel was screaming and kicking his way out. I was so proud to hear that cry. After that they wrapped him up and put him next to my face to kiss him and off he went to the NICU. His dad followed and stayed with him. He was perfect in every way 7.14lbs and 19 in long. After I came to a little better they took me to see the little man. At that point I remember being wheeled in still in a bed to see him. My heart hit the floor and I started to cry I felt this is my fault it was a awful feeling. Seeing him all bandaged up and people hovering him. But he was still perfect after of about 10 mins they took me back to my room and updated us and he was going back to have the back Closure. At that point we where told his opening was in a very odd spot a that they normally don't see open. And couldn't tell us really tell us anything at that point. After surgery I was able to go see him. He was such a big boy breathing on his own and no pain meds after surgery they said everything went great and I seen his little eyes open and he grabbed my finger it was love. He knew I needed him to let me know he was ok. And few day pasted and then the talk of a VP shunt to be placed.  His head was pretty good size at that point reading 63 Cm around and 3 days after birth the shunt was finally placed. His head Began to get smaller and smaller in passing days. He was in the NICU only a week and we went home. Lets speed up here first few months where up and down tons of UTI we weren't cathing. Tons of hospital stays doctors appointment, ER visits, etc... Well after 6 month we finally had to start cathing ugh I don't even know where to Begin with that. But we got through it .Only to stop 2 months later. Abel was Diagnosed with hydronephrosis in his right kidney.

    (Abel's first chair made by dad)

At 6 months my husband built his first wheel chair and he took off at 9 months in it and has never slowed down. 12 month his first wheeled stander and so on and so on the Equipment. We figured out No matter what equipment he's put in adapts too very quickly. His first wheelie I will never forget first time he got his mike box Designs chair.

                ( Mike Box Designs ) 

smiled and popped it back he was 17 months at this point. And he went flying through the house in the chair laughing and giggling at that point he became the fearless kid you know today. Today things have gotten at little easier he is so Independent. And I write this to let other parents and adults know its not the end of the world. Anything is possible never stop trying. Abel is no different from anyone else and Abel can out roll most running adults. Lol Believe me I know
This is Abel's Facebook page:
.https://www.facebook.com/heather.rose.98892

                                                    (Abel and Ella)